To Dallas & Gustav

We are preparing to drive to Dallas for the weekend to see our dear friends Lance & Heather. We leave soon after the girls get out of school. As we are packing, I'm keeping an eye on TS Gustav. As of now, the projected path leads to Louisiana, but the tracking area covers Houston and we are preparing for that as well. We planned on coming home on Monday, but may have to do that on Sunday. If Gustav becomes a hurricane, comes to Houston, and Houston orders evacuations as it did with Rita, then we won't be able to come home at all. The main freeway, Highway 45, that goes north from Houston to Dallas will become a contraflow freeway. That means they open up all lanes of traffic to go north to accommodate 4 million people leaving the city.

Mom is staying here to watch the house and dogs for us. Should evacuations be needed, I have a friend that will get Mom and the dogs and come to Dallas. While I hate for Louisiana and Mississippi to have more destruction so soon after Katrina, I don't want the storm here either. Wish us luck and everyone have a great, safe weekend!

Firsts

Today was the first day of school for Anna & Sydney. Sydney was teary eyed when we left her in her class, but I know she'll be fine. Her teacher, Miss Branch, was Anna's 1st grade teacher too. Anna was also a little nervous when we left but had her friend Richard sitting next to her in class. She has 2 teachers, Mrs. Valicevic for homeroom and Language Arts and Mrs. Kelley for Math and Science. Both teachers seem really nice. I think this is going to be a great school year.

Hayden had his first mapping session today. This was where he got the external part of the implant, the processor, and it was turned on for the first time. He did great! He kept it on for a good part of the session and has been wearing it since we got home. It's on a very low volume right now, but we are going to try to turn it up several levels before we see the audiologist tomorrow morning. This pictures shows one of the body worn styles. He can also wear this behind the ear when we think he's ready.

Chemo #5 is over

That one wasn't so bad! I actually ate a little bit yesterday and today. I'm not sick, a little tired, but doing okay. I even went shopping this morning with the girls for back to school clothes. If the next 3 treatments are like this, then I think I might actually do okay. Yippee!!!

I have my echo scheduled for 8/29 so wish me luck. Jason is off next week. We plan on cramming in an entire summer of activities into the next week along with some well child check ups and therapy. We end the week with meeting the girls' teachers for next year. It should be a fun week.

Countdown

I'll leave in 2 hours to go to chemo #5. By the end of the day, I'll be closer to the end than the beginning. What a great feeling! I'm very anxious about this one only because I don't know how I'll feel when it's done. I shouldn't be sick, but that is a possible side effect. Most likely, I'll be tired for a few days.

There are 2 drugs that I'll be taking. I'll take Taxotere until October. The other drug I'll take is called Herceptin. I'll continue Herceptin for 12 months with a break for surgery. My tumor is HER2+, which is found in about 25% of breast cancer patients. It is an aggressive tumor that grows and spreads more quickly and requires different treatments. Herceptin is not a chemo drug, but rather a monoclonal antibody. These antibodies are more targeted than chemo and attach directly to the proteins that are increasing the cancer cell production. Only patients that are HER2+ take Herceptin. A big risk is recurrence. Herceptin has been found to lower the chance of cancer coming back versus patients that didn't take it.

One of the serious side effects of Herceptin is heart problems. With heart disease on my mom's side of the family (my grandfather and both great-grandfathers died from heart attacks), I'm following orders closely on this one. I'll have an echo cardiogram scheduled soon to see how my heart is tolerating the drug. My friend Odessa who is also my nutritionist has me on supplements that are supposed to improve heart health. I'm determined that if I can fight cancer, then I can fight the byproducts of the drugs as well. The only thing I can't fight is the hair loss. I thought my hair would start to grow back after this last round, but no. What's another 3 months, right?

Radiation still hasn't been completely ruled out. I need to meet with my radiologist to see what she thinks. She's also the doctor that did my genetics testing. Over the next month or so, I'll also be meeting with plastic surgeons to see the direction I want to go in for surgery. I have many options and, being so young, I have a long life ahead of me. I want to be happy with my decision for years to come.

Tidbits

Today's topics: Hayden's birthday, TS Edouard, our new roof and the alphabet.

First, Hayden turned 2 on Sunday! That's also Grandpa Dean's birthday. (Happy birthday, Dad!) We had a nice day. We decided to take the kids to Chuck E Cheese for lunch which all the kids enjoyed. Hayden actually spent more time eating than running amok, his usual MO. Lunch was followed by a nice nap then his cake and presents. His 2 favorites were the tool set from us and tunnel/tent from the girls.

Next, Tropical Storm Edouard came right through our neck of the woods on Tuesday morning. Everyone spent the day before preparing for the worst, but luckily it wasn't bad at all. We've had worse thunderstorms since living here. There were some downed trees and several thousands of people near the area of landfall lost power, but we just got rain. I'm so glad we live north of Houston and not south. Jason did go into work, but stayed in the local Woodlands office which is about 10-15 minutes away.

Third, we are getting a new roof today. It was supposed to be Wednesday, but Edouard caused a few delays. The house is 18 years old and really needed a new roof. There has been enough hail damage over the years that we easily were able to have the claims adjuster approve everything. The guys started late yesterday and have been working today since 7 am. The house should be done today and the garage tomorrow. This was something that our inspector said needed to be replaced soon and, 2 years later, we are getting it done.

Finally, I've been trying to tape Hayden singing his ABCs for a few weeks now. He doesn't just sing, he belts it out! It's really cute, but we are also trying to get a before and after of him singing. Hopefully, this will sound a lot better once he's activated and has had some speech therapy. I hope you enjoy and I apologize for my singing.

Chemo #4 is over

Finally, I am half way thru my chemo treatments!! Number 4 was bad. I get a shot of Neulasta on day 2 after fluids. This is supposed to support production of white blood cells. A common side-effect is bone pain, which until this weekend, I had not had. Well, that's all I had on Saturday. I was achy, similar to body aches from the flu. It was gone by Sunday, thankfully. I was tired as usual all weekend and then my day 5 delayed nausea hit. I have some special compound medicine for that so I thought everything was okay. By Tuesday, I was up taking care of a few things and was tired, which is normal. Then, Tuesday night, it hit. I was so sick and miserable Tuesday night and Wednesday morning that I ended up going in for fluids on Wednesday. I was still sick when I left, but by last night was doing better. This morning, while still fatigued, I'm not sick and I've been out and about. So, I'm back to where I should be.

One of my trips out today was for another ultrasound. More great news: my tumor is down another 0.6 cm to 2.2 cm. Remember I started at 3.4 cm. So I'm pleased. I think I'll go in again in September after 2 rounds on the new drugs, Herceptin and Taxotere. I'm happy with the progress we're making. Of course, I'd like to see it smaller, but at least we know things are working.

In related news, my oncologist is taking a leave of absence starting August 1st. She'll be out until December, so I'm pretty bummed about that. The doctor taking her place, Dr. Kleinbaum, seems nice. I only talked with him a few minutes, but Dr. Crow is confident he'll take good care of me. Let's hope!

Today, we also took off the steri-strips on Hayden's wound and the incision looks great. A lot of the swelling is down, but the poor kid has a lot of bruising on the right side of his face, including a black eye. You can see the implant under the skin, but it may not be as noticeable once the swelling is gone. He seems to notice the lack of hearing in his right ear, but he's adjusted so nicely. We are proud of our little guy.

Hayden survived!

Of course our little one came through his surgery with flying colors! We got to the hospital a little before 10 am on Monday. He was able to play along with all the other children who were having surgery that day. Despite not having eaten since the night before and having no water for a few hours, Hayden was in great spirits. He played and cuddled all morning.

The surgery was scheduled for noon, but Hayden didn't go into the OR until close to 1 pm. All the doctors came out to talk with us and explain again what was going to happen. He had a great team of doctors and nurses to care for him. The surgery was over at 3:30 and he was taken into recovery. Jason and I waited with him for close to an hour before he woke up. When he finally did, boy was he mad! He didn't like being hooked up to all the wires and iv and he didn't like the big cup he had on his ear. Once I was able to hold him and he could drink some apple juice, he calmed down. After another apple juice, popsicle and water, we all agreed that he would be okay to go home. They had a room ready for him and we prepared to stay the night, but his vitals were great and he was keeping liquids down, so there wasn't much reason to keep him.

Hayden slept off and on during rush hour traffic home, but was never sick, thank goodness! He slept for several more hours at home as well. He did have a rough night, but I think he was much more comfortable at home than he would have been at the hospital. Finally at 5 am, he had some applesauce and was able to go to sleep again.

We were so proud of Hayden. He was such a trooper and dealt with this so much better than either of us would have. He even kept his bandages on all day yesterday. That actually is a good sign that we won't have a lot of trouble keeping his processor on. Activation day is August 25th which is also the first day of school for Anna and Sydney.

The girls stayed with a friend of ours, Julie, who is also an audiologist with Texas Children's. Anna and Sydney are the same ages as her 2 oldest girls and they all go to school together. It was nice to know they were having fun during this whole experience and we didn't have to worry about them.

Now we face a new set of challenges. Hayden is now, essentially, deaf in his right ear. There is a small chance for some residual hearing, but we won't know that until the swelling goes down and his ear heals. Physical and speech therapy will also change some. He'll also have to learn to keep his processor on all day and relearn to listen and understand sound. He's a smart kid and had hearing prior to this so he's already got a head start. Wish us luck!